Our foster son (soon to be adopted- yippee!) just met with the Developmental and Behavioral clinic today. I’m sure you can guess from the title, we received an autism spectrum diagnosis. To be more specific, Autism Spectrum Disorder with Global Delays with Speech Impairment.
We knew we had some delays. He’s been in physical therapy since he was three months old.
We knew he had speech delays. He’s been in therapy for that for the last seven months or so.
He’s pretty caught up in PT, but still lagging behind in speech. Although, I believe his receptive speech isn’t too far off target. But his expressive is still significantly behind.
They gave us a severity level of 2 – or moderate…
We figured something was up. Knew this was a possibility. But I kind of expected a mild case (a 1) if we received any diagnosis. So this 2 is kind of throwing me a little. I wasn’t as prepared as I thought I was to hear the words.
I’m pouring over the stacks of papers they sent home with me and have barely scratched the surface.
I’ve called and texted numerous people to give them updates since they’re involved in the case. I think I remembered everyone…
And with that done, I’m now dealing with hearing the words and what it means for our family. What it means for my son. And what I keep coming back to is the fact a whole world of resources and help just opened up for us.
Obviously no one WANTS a diagnosis that complicates things. But we don’t get to choose. My daughter didn’t want a epilepsy. My sons didn’t want ADHD. Depression and anxiety? Nope. My kids didn’t want those either. Migraines? Scoliosis? Please. But you know what? We have them. We live with them. We manage and thrive with them whenever possible. Sometimes we win, other times we take a small break before getting up and trying again.
This diagnosis is no different. And there’s help to learn and manage our stumbling blocks.
I didn’t have access to that support before today.
My brain thrives on information and I have access to it. How wonderful is that? We’re so blessed to live in this time of medicine. I’m grateful to be in this moment when there is more help for my son than ever before.
We’re hoping that with time, the early interventions already in place, and adding more services specifically for this leg of the journey, we’ll be able to help him move from a moderate level to a mild level. There are no guarantees, but we’re going to do our best.
WE ARE SO BLESSED.