Thought So…

7 01 2013

http://www.bbc.co.uk/news/health-20908903

The link above leads to an article suggesting VERY STRONG EVIDENCE that migraines and epilepsy share a genetic factor.

I’ve thought the two were related since dd11 was diagnosed a couple years ago. Happily, she’s now in remission.

My reason for thinking migraines and epilepsy were related?

I have two cousins (they’re siblings) with an epilepsy diagnosis. My daughter, and then a cousin’s daughter.

The breakdown: two boys, two girls (the boys are my cousins). As far as types of seizures, using the old terminology, one of the boys had grand mal (he’s also in remission) and one has petite mal (not sure of his status). The girls are on the next rung of the generational ladder. My cousin’s daughter has petite mal. My daughter suffered from both.

A big number of migraines flood this side of the family as well. Scary, some of those migraines seem to have progressed to mini-strokes, then on to major strokes.

I’m the oldest of six kids. At least four of us (two girls, two boys) suffer from migraines. Mine come with and without auro – depends on the trigger. Ds15 has already had a few – which were scary. He also has an aura first, and his symptoms during that time mimmic stroke (messed up speech, can’t talk, numb face, numb hand), and Dd13 has had one.

Also interesting to me, many of my migraine triggers matched my daughter’s seizure triggers. In fact, the night she had her first seizure (which we believe was the worst) was the 10th day of a migraine cycle for me. I’d battled 5 migraines in that 10 day period. I’d NEVER had that happen before. That day, I finally found the trigger – the scented oil in the bathroom. It had been there for a few weeks, and seems to have slowly overwhelmed me. I closed it, and my migraines stopped. Her seizures began that night.

I hope this new information leads to better treatment for both issues. This time of medical advances and technology really is an exciting time to be alive in 🙂

Advertisements

Actions

Information

5 responses

7 01 2013
caryn

I had no idea…….Thanks for bringing this interesting information to light. Yes, it is exciting to see medical advances in the diabetes world as well. So glad there are people out there who can figure this stuff out.

7 01 2013
ajdurrant

I bet those diabetic advances are incredibly wonderful!

The frustrating part with this experience though, was when my questions/concerns were dismissed. Just two and a half years ago, when I asked if the two were related, I was flat out told no.

There’s so much that science hasn’t uncovered yet.

I’m so glad they’re finding more and more every day, but they don’t have all the answers. Sometimes you have to go with your gut.

Even though the neurologist assured me that scent would not cause a seizure for Alta, I was her canary, so to speak. If a scent gave me a headache, I didn’t let it get near her. After talking to other people who deal with epilepsy, I’ve found more that are sensitive to scent…which also happens to be one of my migraine triggers.

7 01 2013
staryn

I had no idea……Thanks for bringing this interesting information to light. Yes, it is exciting to see medical advances in the diabetes world as well. So glad there are people out there who can figure this stuff out.

9 01 2013
DD13

could stress trigger a seizure?
I think that’s what happened for my migraine.

10 01 2013
ajdurrant

I believe yes to both.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s




%d bloggers like this: